Catecholamine-secreting tumour that typically derived from chromaffin cells of the adrenal medulla
Aetiology
- 10% (up to 30%) are extra-adrenal → paragangliomas
- Occur elsewhere in the sympathetic chain - typically occur in the head and neck but are also found in the thorax, pelvis and bladder
- More closely associated with genetic associations than phaeochromocytoma
- 10% are bilateral (up to 50% in familial cases)
- 10% are biologically malignant (metastasis)
- More common (20-40%) in paragangliomas
- 10% are NOT associated with hypertention
- 25% are familial
- Germline mutations in one of several known pre-disposing genes including neurofibroma type 1, RET (MEN2), VHL, succinate dehydrogenase enzymes and tuberous sclerosis
- Younger presentation, more often bilateral
- More often malignant if associated with germline mutation of B unit of succinade dehydroxinate
Pathophysiology
- Secrete catecholamines
- Rare cause of secondary hypertension
Spread
- Propensity for skeletal metastasis
- Other sites include regional lymph nodes, liver and lung
Clinical presentation
- Insidious onset in most patients
- 10% have no symptoms of adrenal disease
Symptoms
- Classical triad (up to 90% of cases) - hypertension, headache, sweating
- Paroxysmal sweating, headache, anxiety
- Episodes triggered by stress, exercise, posture, palpation of the tumour
- Paraganglioma of the bladder assocaited with micturition during episodes
- Weight loss
Signs
- Hypertension (50% paroxysmal, 50% persistant)
- Postural hypotension in 50% of cases
- Pallor
- Tachycardia, paradoxycal bradycardia
- Pyrexia
Signs of complications
- LV failure
- Myocardial necrosis
- Stroke
- Shock
- Paralytic ileus of bowel
Investigations
Lab tests
- 2 x 24 hr catecholamines or metanephrites
- 7% of phaeochromocytomas had normal 24 hr urinary catecholamines - secretion is episodic so take samples when patient symptomatic
- Plasma metanephrites, ideally at time of symptoms
Other biochemical abnormalities
- Hyperglycaemia
- May be low K+
- High haemocrit (raised Hb concentration)
- Mild hypercalcaemia
- Lactic acidosis - in absence of shock
Imaging
- MRI - abdomen or whole body
- MIBG scan
- PET scan
Management
Preoperative management
- Full ⍺-blockade (phenoxybenzamine), when stable full β-blockade (propranalol, atenolol or metoprolol)
- Fluid and/or blood replacement
- Anaethetic assessment
Definitive treatment
- Laparascopic surgery
- Total excision where possible
- Tumour de-bulking if unlikely to be cured by surgery - reduces excess hormone production
- Chemotherapy if malignant, consider radio-labelled MIBG
After surgery
- Long-term followup
- Genetic testing and family tracing and investigation
- Patients with known Phaeo predisposition genes should undergo periodical clinical, biochemical and radiological evaluation to facilitate the early detection of tumours
Complications
- Cardiac failure, infarction, arrhythmias
- CVA